This event is organised every other year by the European Organisation for Research and Treatment of Cancer (EORTC), which is an independent, non-profit cancer research organisation. EORTC’s mission is to coordinate and conduct international translational and clinical research to increase people’s survival and quality of life by testing new therapeutic strategies based on existing drugs, surgery and radiotherapy. EORTC also specialises in the development and linguistic validations of generic and cancer specific QoL measures in line with the strictest scientific, quality and reliability requirements.
It was the 5th edition of an incredibly stimulating conference that created the opportunity to learn about the latest topics in quality of life (QoL) and patient reported outcomes (PRO) research. The two-day conference brought together over 30 researchers from around the world to present and discuss the current state of the art PRO research. A variety of topics were covered including the latest methods for instrument development and QoL measurement in cancer clinical trials, methods for designing robust patient-centric studies and key factors contributing to a coherent understanding of clinical outcomes. Moreover, multiple sessions focused on discussing emerging technologies and the rapidly growing field of electronic questionnaire administration. This is particularly important for the PCO team at OPEN VIE as we observe an increasing need for a shift from collecting patient centric data in a standard paper way to collecting the same, robust data in an electronic format. Hence, a high proportion of PCO studies that we design for our clients incorporate robust, scientific standards with advances in modern technology to embrace the digital revolution in healthcare.