Rare Disease thoughts & outcomes
Improving life transitions in people living with rare
Innovative medicines and better supportive care mean that more patients are living longer with rare disease. Although, with it comes new challenges for these patients in transitioning through life. Patients may be left isolated, leading them to disengage with health systems and not adhere to treatment. This creates a gap in the understanding of the long-term benefit and value of new innovations, resulting in delayed or limited access.
Pharma can play a key role in supporting better understanding and implementation of transition support by employing a multidisciplinary approach to solving some of the key challenges.
