Ed Senior – representing our Patient and Brand Communications practice
Pharma is making great strides in involving patients early in their strategies. As there are more and more examples of true patient involvement and decision-making, it will become the norm and the patient voice will be routinely integral to decisions that govern their care. It was great to learn about examples and I hope these form a springboard for more next year.
The session on improving healthcare communications in rare disease was a truly collaborative and patient-centric presentation, with OPEN Health’s Gavin Jones co-presenting with Benjamin James, patient advocate and David Rose from Rare Revolution Magazine. This session underlined not only the importance of early engagement with patients, but also the crucial role that Patient Advocacy Groups play in the appropriate partnerships with Pharma to deliver better outcomes. Benjamin’s research observations are being developed into formal recommendations for pharma-patient engagement which will be another key step in this process.
At the conference, smaller biotech companies attended alongside big pharma and it was evident that OPEN Health can play an important role in helping them develop the right communications to patients, public and healthcare professionals. OPEN Health applies multidisciplinary thinking to our client’s challenges, creating bespoke teams to provide these organisations with the structure and expertise to guide new products with early insight and communication solutions before launch.
I hope OPEN Health will be back at the congress in 2020 and we look forward to meeting friends and colleagues in Barcelona again soon.