News
Beth Lesher, Strategic Market Access Director, Pharmerit and Annemarie Clegg, Senior Vice President, Peloton Advantage examine what the convergence of medical communications and market access means for pharmaceutical companies. Value in healthcare is a continually...
From junior doctor to gene therapy CEO, how one person’s drive to make rare disease curable is shaping the future of medicine. It was a truly touching story to hear Dr Gaspar...
Another congress attended in this virtual world with learnings gathered and connections made across the rare disease community. It was great to be joined by many colleagues from all our disciplines demonstrating...
OPEN Health are proud to support RARE Revolution Magazine who have launched a dedicated RARE youth online platform powering up the voices of the youth rare disease community. RARE Revolution Magazine are excited to announce the...
This was my first fully virtual congress and it must go down as a success – a fantastic well done to the teams at EURORDIS and ORPHANET who turned this around in...
In the ongoing effort to curb the spread of the COVID-19 pandemic and deliver urgent care to those affected, healthcare providers around the world are being forced to review existing treatment pathways....
Share of voice for individual rare diseases is by its very nature, rare. Success has been found in the space by taking a strength in numbers approach, working together across different diseases...
Virtual meetings, training and maintaining morale As travel restrictions increase globally, resulting in the postponement of many medical conferences, home-working is increasing and with it we are facing a number of challenges;...
With recent global health events impacting our personal and professional lives, our clients need to make complex and difficult decisions about their medical communications activities. With travel being increasingly restricted and many...