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One of the most exciting benefits of social media has long been using paid promotion to directly target your audience. The options to do this constantly change, highlighting the need to stay...
Hopefully many more rare diseases will soon have disease modifying treatments that have the potential to transform patient lives. However if diagnostic, treatment and management pathways are not ready or fit for...
“My My, Hey Hey, social media is here to stay,” as Neil Young almost said. Yes, social media is now an established part of pharmaceutical communications, with most companies having an active...
Mobilizing pathway change – what the past 25 years have shown me Welcome to OPEN Health’s second Rare Thoughts & Outcomes theme for 2021 – Navigating pathways to better outcomes. This is...
You know your team needs training. But not all training providers and programs are created equal. Last week, we shared the benefits of working with specialist learning and development (L&D) teams to...
Authors: J Y Tang, M P Marinkovich, E Lucas, E Gorell, A Chiou, Y Lu, J Gillon, D Patel, D Rudin Published: Orphanet Journal of Rare Diseases, 2021 View publication Background/objective Recessive...
There are many life transitions where people can experience loss of control, for example during menopause or pregnancy. Rare disease patients face significant physical and psychological effects of navigating life transitions as...
In light of the recent global health events, there are certainly more questions than answers. Fortunately, we will be speaking with infectious disease expert, John McConnell to answer your questions and better...
Gavin Jones, Director of Rare Disease, OPEN Health was in conversation with Peter Rutherford, Global Medical Lead, Orphan Renal Diseases, Vifor Pharma, about the current challenges for the rare disease community, identifying...