News
Disruptive listening as a way to increase patient engagement in research was but one topic explored in the Patients as Partners Europe virtual conference that took place January 25th and 26th. The virtual...
As we move on from our first theme of 2021, I am keen to provide an overview of what we covered and, more importantly, what we learned through different discussions and articles...
At the start of January, we held our first webinar based on our Rare Thoughts and Outcomes theme 2021. It was a fascinating discussion on the challenges of transitioning through life for...
Through progress in knowledge, care and innovation – people are living longer with rare disease. This is clearly very positive, but it comes with a new set of challenges for the rare...
Click here for the 2020 rare disease yearbook OPEN Health are proud to publish their 2020 rare disease yearbook. This presents highlights of articles and webinars we developed last year with the...
ISPOR EU 2020 delivered a wide spectrum of topics related to market access. Avoiding the topic of COVID-19 and the challenges this pandemic has brought to our discipline was impossible, it seems,...
How fantastic is it to see that the National Organisation for Rare Disorders (NORD) has followed up on a survey undertaken in the late 80’s to pressure test progress and identify key...
Entering A New Era – but what will this new era look like? It was the NORD congress last week and I wanted to give some thoughts on a key theme that...
Improving patient outcomes is a top priority for every healthcare professional (HCP). In a constantly evolving industry where knowledge, skills, techniques and technologies are frequently updated, continuous internal training for medical affairs...