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*This article was first published in Rare Revolution Magazine, Issue no. 013, Autumn, 2019. Since the introduction of the gene therapy concept in the 1960s, significant advances have been made to bring this...
Welcome to our third Thoughts & Outcomes Theme of 2021, where we will be revisiting the topic of gene therapy, the promise of which remains as compelling as ever. Throughout this theme...
With digital learning solutions growing at an exciting rate, it is more important than ever in healthcare training to remember a crucial stakeholder that has risen to prominence in recent years —...
Having reached the conclusion of our second Rare Thoughts & Outcomes theme of the year, we are wrapping things up with a quick overview of the key learnings. We’ve enjoyed some insightful...
In a world of increasing complexity, the primary goal of any healthcare system is remarkably simple: to ensure patients have access to the best care and the best treatments for their condition....
Healthcare professionals (HCPs) can feel lost while navigating treatments of patients with a rare disease For most rare diseases, HCPs often find themselves exploring their way through a treatment pathway for the...
Measures of success in training programs rely heavily on assessments of, and for, learning. Summative (graded) assessments provide ways to compare learner progress against pre-determined knowledge and competencies-based benchmarks, check that learning...
OPEN Health recently held our latest panel on our current theme of Navigating Pathways to Better Outcomes in Rare. This conversation was on exciting developments in technology that enable far greater potential...
This two day event brought together the global community to discuss worldwide trends influencing patient access to safe and effective therapies. This month we focus specifically on value demonstration and communication through...