Written on Wednesday 16th March 2022
As the uptake of personalized medicine and advanced therapies has increased, so has the pressure on healthcare budgets. To enable informed decisions on the long-term value that new therapies may provide to people living with rare disease, it is critical to convey a comprehensive picture of burden and do so in a way that resonates with decision makers.
In this webinar, we will look at:
Speakers:
Roanna Maharaj - Patient advocate and thalassemia community representative
Sheela Upadhyaya - Rare disease expert
Ella Balasa - Patient advocate, speaker, published writer, and health engagement consultant
Josie Godfrey - Director, JG Zebra Consulting, and Co-Founder, Realise Advocacy
Rosemary Jose - Senior Director, Strategic Market Access, OPEN Health Evidence and Access
Karen Bailey - Associate Director, Patient-Centered Outcomes, OPEN Health Evidence and Access
Gavin Jones - Global Advisor, Rare Disease, OPEN Health