EB World Congress - building on momentum and strength in numbers for epidermolysis bullosa

Written by Ben Speller on Monday 27th April 2020

Share of voice for individual rare diseases is by its very nature, rare. Success has been found in the space by taking a strength in numbers approach, working together across different diseases and therapy areas to attract attention and funding. But when does a rare disease have sufficient researchers and clinicians invested in it to be ready to step out on its own and start to establish itself with dedicated conferences and events?

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To hear more about all of our work in rare disease please contact gavinjones@openhealthgroup.com