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EB World Congress – building on momentum and strength in numbers for epidermolysis bullosa
Written by Ben Speller on Monday, April 27, 2020
Share of voice for individual rare diseases is by its very nature, rare. Success has been found in the space by taking a strength in numbers approach, working together across different diseases and therapy areas to attract attention and funding. But when does a rare disease have sufficient researchers and clinicians invested in it to be ready to step out on its own and start to establish itself with dedicated conferences and events?
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