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Written on Thursday 20th October 2022
There is a deepening recognition of the value of engaging patients, their caregivers, and their advocacy organizations as partners to promote an understanding of burden and patient need, and thereby inform evidence generation and value argumentation. Whilst patients are becoming more attuned to data, evidence, and outcomes, the scientific and technical world of HEOR can be awash in acronyms and jargon. To engage with patient communities and invite them to be increasingly involved in HEOR activities, Pharma must make it more accessible to them.
Danielle Drachmann – Executive Director of Ketotic Hypoglycemia International & Patient Representative at the European Medicines AgencyJosie Godfrey – Project lead Project Hercules & Cofounder of Realise AdvocacyKristine Sorensen – Founder of Global Health Literacy Academy & President of International Health Literacy AssociationBeth Lesher – Senior Director, Strategic Market Access, OPEN HealthKelly McCarrier – Director and Qualitative Research Lead, Patient-Centered Outcomes, OPEN HealthChair:Gavin Jones – Global Advisor, Rare Disease, OPEN Health
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