How do we overcome these multiple disparities impacting on better outcomes in rare disease? Durhane Wong–Reider led an excellent session on creating sustainable healthcare systems supporting rare disease across the Globe. There are factors, transcending regional borders, that threaten future access to innovation and increasing inequality of access including the removal of legislation that incentivises investment in rare disease research.
If we face similar challenges, perhaps we should fight with one voice? One perspective presented during this session was how the treatment of HIV has been ‘Globalised’ and what lessons can be learned from this. Looking also at how the world has been mobilised in protesting against the disregard of climate change and inequalities based on skin colour also demonstrates that strength in numbers can drive change. As a note, it was great to see another congress in quick succession (the other was the Rare Fair) tackle head on health inequalities based on gender, race and ethnicity with a break-out session well chaired by Eric Dube.
So, returning to the congress theme. Is there an opportunity to harness all the unwavering commitment to better outcomes in rare disease that resides in communities, countries and regions? Are we entering a new era of a Global voice towards collective positive change in rare disease.