Publications Psychometric validation of the Cystic Fibrosis Impact Questionnaire (CF-IQ): A patient-reported outcome assessing impacts of cystic fibrosis
Publications Potential barriers to implementation of next-generation sequencing in cancer management: a U.S. Physician-based survey
Publications Symptoms across the phases of the migraine cycle from the patient’s perspective: Results of the MiCOAS qualitative study
Publications Impact of recurrence on employment, finances, and productivity for early-stage cancer patients and caregivers: US survey
Publications Content validation of the QOL-B-RD and PROMIS-F SF-7a to measure respiratory and fatigue symptoms of MAC lung disease
Publications Posaconazole effectiveness in rare invasive fungal infections: A systematic literature review
Publications Leveraging social media data to study disease and treatment characteristics of Hodgkin’s lymphoma Using Natural Language Processing methods
Publications What next for the science of patient preference? Interoperability, standardization, and transferability