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Close-up of a genetics request form labelled Spinal Muscular Atrophy with a barcode, beside a pen and a container holding several laboratory test vials filled with blue liquid.

PRO22 A real world study investigating the resource use and burden associated with Spinal Muscular Atrophy (SMA) from the perspective of patients and carers in the UK

Authors: J J Rothwell, S A Vincent, S Saberian, M Scoto, F Muntoni

Published: Value in Health, 2020

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To describe the types of healthcare and non-healthcare resource use and burden experienced by patients with SMA type I, II and III in the UK.