Written by Gavin Jones, Global Advisor, Rare Disease on Thursday 25th February 2021
In our continued focus on improving patient transitions for people living with rare, we are sharing an audio recording of a panel discussion that took place at a World Orphan Congress in 2020. We were keen to share this discussion so it reaches a wider audience to hear the excellent insights.
The round table heard from a number of patients and care-givers giving their personal experiences plus thoughts from our Head of Health Psychology & Research, Dr. Sumira Riaz, and Head of Patient Engagement, Richard Jones. We would like to thank all participant for sharing their impactful stories and thoughts on how adolescent transition can be improved and supported by all healthcare stakeholders.