Increasing awareness and diagnosis of mental health issues and optimising the healthcare infrastructure to better support those with a mental health condition is a Global priority, with some markets investing billions in mental health initiatives. Along with an improvement in patient quality of life, it is well documented that improving the management of mental health conditions has a direct positive socioeconomic impact.
But what about those who suffer from mental health issues as a result of a physical illness? For those with a rare disease and their families, the impact of numerous healthcare interventions, the stress of ongoing uncertainty, the pressure to become an expert in your own condition, and the worry for the future can have a huge impact on mental wellness. With these factors and more at play, it may be no surprise that a disproportionate percentage of rare disease patients report experiencing depression, anxiety and stress versus the general population. Unfortunately, many rare disease patients and their families do not receive the emotional support that they need, and their mental health may be overlooked due to an ongoing focus on the management and treatment of physical symptoms.