Written by Gavin Jones, Global Advisor Rare Disease on Friday 18th February 2022
To mark Rare Disease Day 2022 on Monday 28 February, OPEN Health will be intentionally quiet on all social channels so that we do not distract from awareness generated by patient groups.
In fact, we want to offer our platform to amplify the voices of the rare disease community and will be sharing Rare Disease Day-related content during this period. So, if you are part of a patient group and would like us to share your posts, please tag #Share4Rare and we will happily share to our network.
We recognize the importance of this day for rare disease patient groups in supporting their communities and raising awareness, and it’s for this reason that OPEN Health is saying “Shhhh” on Rare Disease Day 2022!
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