Written on Monday 1st March 2021
There are many life transitions where people can experience loss of control, for example during menopause or pregnancy. Rare disease patients face significant physical and psychological effects of navigating life transitions as there are numerous pathways and societal constraints to overcome. Understanding the impact of these pathways has a direct influence on the value placed in new treatments and interventions, which makes it a very important factor to recognize and measure to drive positive change.
During this panel, experts will discuss what can be done to further understand the impact of life transitions for patients living with a rare disease.