Join OPEN Health at the Panel Webinar –
Date and Time: September 23, 2021. 12:00 PM - 1:00 PM EDT.
This webinar will explore patient and caregiver experience and the key needs for ensuring truly informed decisions towards gene therapy, with a focus on the psychology of decision-making, the role of healthcare professionals, and how different groups can work together to deliver fully informed decision-making processes.
Ms Debra Miller – Founder & CEO, Cure Duchenne
Mr Luke Pembroke – Creative Director, Haemnet and Patient Advocate
Dr Stephen A. Kagan – Global Medical Lead, Gene Therapy Platform and Cross Portfolio, Pfizer Rare Disease
Dr Albert Freedman – Founder & Consulting Psychologist, Freedman Counselling Associates
Dr Declan O’Rourke – Consultant Paediatric Neurologist, Associate Clinical Professor UCD, and Associate Director of Research CHI
Gavin Jones – Global Advisor, Rare Disease, OPEN Health.