September 23 2021

Panel Webinar – Informing Patient and Caregiver Decisions Towards Gene Therapy

Join OPEN Health at the Panel Webinar –

Informing patient and caregiver decisions towards gene therapy

Date and Time: September 23, 2021. 12:00 PM - 1:00 PM EDT.

This webinar will explore patient and caregiver experience and the key needs for ensuring truly informed decisions towards gene therapy, with a focus on the psychology of decision-making, the role of healthcare professionals, and how different groups can work together to deliver fully informed decision-making processes.


Ms Debra Miller – Founder & CEO, Cure Duchenne

Mr Luke Pembroke – Creative Director, Haemnet and Patient Advocate

Dr Stephen A. Kagan – Global Medical Lead, Gene Therapy Platform and Cross Portfolio, Pfizer Rare Disease

Dr Albert Freedman – Founder & Consulting Psychologist, Freedman Counselling Associates

Dr Declan O’Rourke – Consultant Paediatric Neurologist, Associate Clinical Professor UCD, and Associate Director of Research CHI


Gavin Jones – Global Advisor, Rare Disease, OPEN Health.