September 19 2021

European Paediatric Rheumatology Congress

Join OPEN Health at the European Paediatric Rheumatology Congress 2021 on September 9th.

The 1-hour symposium slot entitled 

Pathways to hope: finding children with rare conditions – lessons from Fibrodysplasia Ossificans Progressiva

is an exemplary model for advocacy and improving access to the right care.


Chaired by: Gavin Jones, Rare Disease Director

Date & Time: Sunday, 19th September at 12:45 CET.

This is an invitation for you to register for the event to see the Tin Soldiers work in action.